Neuroblastoma Recovery
In this video, Kevin Wright spends about 27 minutes speaking on "Neuroblastoma Recovery" at the 35th Annual Cancer Convention held on Labor Day weekend by the Cancer Control Society.
Transcription
Thank you, everybody. I came here to tell you about my son, Bobby. He was born in February 2002. He had an undiagnosed breech birth at home and he was perfect, apart from an undescended testicle, which I was told by the doctors is just one of those things. But, of course, I now know that indicate some kind of hormone disruption whilst in the womb.
The testicle was brought down while under general anesthetic just after his first birthday. All was well for the next two years. Bobby grew and developed normally. I was very pleased that my wife breastfed him for two and a half years with no problems until our family doctor gave my wife Jackie, antibiotics, which he said she could breastfeed on. But when we checked, we found that breastfeeding should be stopped while taking this drug. We'd always had trust and faith in our family doctor who we thought knew best. The only type of medicine we had ever used was pathic. Bobby's third birthday, February 05. This picture was taken on his birthday. It came and it went. But it was around this time that we know is Bobby was not keen on walking. He wanted to ride in his pushchair more than our door. Data is age, but we just put it down to him being a boy and being a bit lazy on Good Friday morning of 2005. Bobby was three years and three months. Jackie was dressing him and saw that he had a swelling in his left groin and a cellulitis type rash on the front of his left thigh and a noticeable limp. She took his temperature, which was on the high side. So as it was a public holiday, she took him to a local hospital. As the family doctor's surgery was not open, the doctors at the hospital diagnosed osteomyelitis, bacterial infection of the bone marrow and admitted him as an inpatient set. A course of I.V. antibiotics could be given over the next two weeks. Various different antibiotics were given, which achieved only temporary relief of his symptoms. During the third week, an incision was made in the outside of Bobby's left thigh and holes were drilled in his femur to, quote, let the antibiotics into the bone marrow. But still no change. He CERP was up and down. The worst part of all this was the insertion of a cannula every other day, which never found a vein first time. And I cried with him.
It was June this third week that while in my village pub, after leaving the hospital at nine pm, that another local who's a retired doctor knew that Bobby